CA Access News - Outreach and Education for a Healthier California

The California Partnership for Access to Treatment (CPAT) is pleased to provide the November-December issue of CA Access News, a monthly e-news publication for CPAT partners, members and supporters, which highlights current health care issues at the state and national level. We welcome your comments, suggestions and contributions.

IN THIS ISSUE:
In the News
Advocate Advantage
Calendar
Partner Spotlight
Join the Network
Health Science News

Nov/Dec 2014

Millions of Californians may get sicker, rather than healthier, if they sign up for health plans through the exchange marketplaces unless significant patient protections are put into place this legislative session. That was the consensus of healthcare experts at a meeting of health policy and patient advocates in Sacramento last week. Dr. Ken Thorpe, Chair of the PFCD, the sponsor of the meeting, shared the results of studies and data that while chronic diseases are increasing at an alarming rate, health plans are making access to the medicines they require nearly impossible to access.

"Chronic disease is the number one cause of death and disability in the United States and in California. About 40 to 50 percent of residents in this state have at least one chronic condition but what we've found is that chronic conditions come in bundles, patients generally have multiple chronic diseases, which makes the treatment and protocol algorithm all the more complicated."
-- Kenneth Thorpe, Ph.D., Chair, PFCD


Get more information on the event here and on PFCD here and in the Calendar section of the newsletter.

CPAT anticipates a number of pieces of legislation introduced in California next year to ensure that patients maintain access to their specialists and medicines. We will keep you posted and contact you directly to determine how you would like to be involved.


In the News

Survey: 52% of Consumers Say Covered California Working Well

Tougher transparency rules proposed for health exchange plans

World AIDS Day 2014: Transforming the Trajectory of Disease

Advocates seek more enforcement of Obamacare drug benefits

More Than 100K Submit Exchange Applications on First Day, HHS Says

Thinking About Enrolling In Obamacare? Keep These 5 Tips In Mind

Advocate Advantage

Bonnie J. Addario Lung Cancer Foundation Shows Cancer Research Breakthroughs Rely on Collaboration and Innovation

By Bonnie Addario, Stage 3B Lung Cancer Survivor, Founder and Chair, The Bonnie J. Addario Lung Cancer Foundation, Addario Lung Cancer Medical Institute

In 1971 Richard Nixon declared war on cancer, but the war on lung cancer never got started. An estimated 30,000,000 people have been lost to lung cancer in the past 40 years worldwide. Lung cancer is the top cancer killer worldwide, but because lung cancer carries the stigma of a smoker's disease, experts say it is often overlooked in non-smoking patients and does not get the kind of funding or support given to breast cancer and other big cancer killers. Rarely are radon, the environment, familial and other causes mentioned.

READ MORE

Calendar

CPAT PARTNER EVENTS



Chronic Disease, Patient Protections and the ACA: Addressing Access & Affordability

On December 2, CPAT sponsored the Partnership to Fight Chronic Disease's (PFCD) special complimentary healthcare forum in Sacramento. The event, which featured leading health policy experts, physicians and patient advocates, was a provocative discussion about how the ACA is impacting the accessibility and affordability of healthcare in California -- and what patient protections must be addressed in 2015.

Event materials can be seen here.

Speakers included:

  • Richard Pan, Senator 6th District
  • Andrew George, Department of Managed Health Care
  • Carl Schmid, The AIDS Institute
  • Dana Malick, American Cancer Society Cancer Action Network, Inc.
  • Emily Bazar, California Healthcare Foundation Center for Center Health Reporting
  • Joan Werblun, California Health Collaborative
  • Larry Hausner, Former CEO, American Diabetes Association
  • Liz Helms, California Chronic Care Coalition





Thank you to the elected officials who attended the event:

  • Senator Dr. Richard Pan
  • Senate Office of Research
  • Senate Republican Policy Office
  • Assembly Member Ed Chau
  • Assembly Member Susan Bonilla
  • Assembly Health Committee


Script Your Future Sacramento/California
Winter Coalition Meeting
Monday, December 15, 2014
Noon - 3:00 PM

RSVP here

Celebrate Success: Hear from our partners and learn about the collective achievements of our outreach efforts.
Beyond the Pilot: Help chart the path of Script Your Future so that together we can continue to improve medication adherence for better outcomes and reduced system costs.
Join together: Network with dozens of coalition partners including organizations representing consumers, patients, caregivers, students and universities, providers, practitioners, health insurers, public health, state and local government, community-based organizations, the pharmaceutical industry, and health care systems.

A complimentary networking lunch will be provided at 12 noon
Meeting will begin at 12:30pm



Would you like to see your organization's event listed? Contact Yadira Beas at yadira@perrycom.com to help promote your upcoming event.

Join the Network



The American Diabetes Association fights against the deadly consequences of diabetes for those affected by diabetes by:

  • Funding research to prevent, cure and manage diabetes
  • Delivering services to hundreds of communities
  • Providing objective and credible information
  • Giving a voice to those denied their rights because of diabetes.

The moving force behind the work of the Association is a network of more than one million volunteers, a membership of more than 441,000 people with diabetes, their families and caregivers, a professional society of nearly 16,500 health care professionals, and more than 800 staff members.

American Diabetes Association Mission Statement:
The American Diabetes Association is a driving force within the global diabetes community, working relentlessly to provide targeted programs and lifesaving resources for those living with diabetes, their families, health care professionals, and those at risk.

/AmericanDiabetesAssociation

@AmDiabetesAssn

Website

 

Join the Network

Joining CPAT is free of charge. The benefits of becoming a CPAT partner include receiving a monthly e-newsletter, CA Access News, and you will be invited to participate in quarterly seminars and have the opportunity to promote health events on the CPAT website. For more information, please visit www.caaccess.org and to become a partner, simply complete the application online.

Join Now

Do you know a group who would be interested in joining CPAT?
Please send your referrals to:
Northern California - Yadira Beas
Southern California - Keeley Smith

Health Science News

Health Care Resources: AccessBetterCoverage.org

Videos
The Coverage Classroom features short and informative videos that explain health insurance principles in a clear and concise way. Topics to date include:

Insurance Basics
Tips and questions patients can ask about coverage before choosing a plan.

State Specific Information
Patients can learn about the programs and resources available in each state by visiting the In Your State section.

Resources and Data
The Research section keeps patients and advocates informed of new studies and findings related to health coverage and costs. Currently available studies include:

  • An Analysis of Exchange Plan Benefits for Certain Medicines
  • Access to Medicines for Chronic Conditions
  • Cost-Sharing Reductions Unevenly Applied Across Services in Exchange Plans

The Glossary section defines some of the most commonly used health insurance terms to help ensure that individuals have the information they need to make informed decisions about their coverage plan.

Breaking News and Blog Posts
The latest News on coverage and access and PhRMA blog posts.

Follow @ABCsofCoverage on Twitter for more resources.


Pipeline of Hope

Want to know how life-saving and life-enhancing medicines are developed? A new post on PhRMA's Innovation Hub website, titled Pipeline of Hope, brings this process to life. Visit the Pipeline of Hope website to learn more about this extensive process, from the initial idea to the research and clinical trials, that can take up to 10 years to complete.


Affordable Care Act Health Insurance Exchange Toolkit

CPAT is pleased to provide our partners and advocates with an Affordable Care Act Health Insurance Exchange Toolkit to assist you in educating your constituents about how to choose the best plan and coverage for prescription medicines in essential health benefits. The Affordable Care Act health exchange open enrollment began November 15, 2014. This resource includes:

  • Overview of plan designs
  • Financial assistance in the exchange marketplace
  • Key components of plan selection
  • Coverage for prescription medicines in essential health benefits

We encourage you to make this toolkit your own by branding it with your organization logo or putting it on letterhead. Our team is happy to assist any of our partners or advocates in branding this toolkit and disseminating to your network.

Downloads


Parity or Disparity: The State of Mental Health in America 2015

A note from Paul Gionfriddo, President and CEO, of Mental Health America:

I am so pleased to share Mental Health America's Parity or Disparity: The State of Mental Health in America 2015 first annual report with you. For many years, Mental Health America has wanted to identify a common set of data indicators for mental health that would give us a more complete picture of mental health status in America. And as both the Mental Health Parity and Addiction Equity Act and the Patient Protection and Affordable Care Act were implemented, we also saw a need to establish a baseline from which we could document the successes and failures of both federal and state initiatives aimed at improving mental health status. This report is the result. Read more here.


The Pharmaceutical Researchers and Manufacturers of America recently launched PhRMApedia, a resource hub that organizes and aggregates policy content, reports, news, graphics and more. This essential tool has been redesigned to help users intuitively navigate PhRMA's vast content library, offering various filters to make resources more accessible and shareable. These filters allow visitors to explore content by:

  • Topic: Clinical Trials, Insurance Coverage & Exchanges, Science & Innovation, Value & Cost, and more
  • Disease: Cancer, Hepatitis C, HIV/AIDS, and more
  • Content Type: Blog Post, Chart Pack, Press Release, Reports, and more

Additionally, PhRMA's graphic resources will now exist in one central location, allowing site visitors to navigate and share visual content (including social media shareables, charts, and infographics) by topic.

To use PhRMApedia, visit phrma.org/phrmapedia, where you will find a comprehensive aggregation of content in a tile display. Select one or multiple filters to limit the content displayed to meet specific criteria, or browse the full display to explore the latest news, graphics and updates being produced on PhRMA.org.

 

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