CA Access News - Outreach and Education for a Healthier California

The California Partnership for Access to Treatment (CPAT) is pleased to provide the September issue of CA Access News, a monthly e-news publication for CPAT partners, members and supporters, which highlights current health care issues at the state and national level. We welcome your comments, suggestions and contributions.

IN THIS ISSUE:
In the News
Advocate Advantage
Calendar
Partner Spotlight
Join the Network
Health Science News

September 2014

In the News

California officials gearing up for Obamacare open enrollment

Preparing to choose a Medicare drug plan for 2015

While the Majority of Americans Report It Has Been A Good Health Year, Americans with Chronic Health Issues Are Less Optimistic

Is Your Child Fully Vaccinated? Young Adults Need Vaccines, Too

Chronic Leukemias: Survival Rates Rise

A Perilous Gap in Health Insurance Literacy



CPAT partnered with the California Biotechnology Foundation and many other patient advocacy groups to host educational seminars on the need for access to medicines and transparency in drug formularies. The seminars, held in Pomona on September 8 and in Sacramento on September 17, attracted policymakers, health care providers, patient advocates and community leaders, and focused on resources available to help consumers determine the health plan that best fits their treatment needs. That fact that you can't find out if your choice of health plans covers your medicines inspired the discussion on the need for searchable formulary database resources on the Covered California website. Attendees, including Senator Norma Torres, Assemblyman Freddie Rodriguez and Assemblyman Dr. Richard Pan, discussed current legislative efforts aimed to improve access and transparency in drug formularies. See the presentations here.

Legislative Action:
Governor Jerry Brown signed SB 1052 by Senator Norma Torres (D-Pomona) into law on September 26th. The bill addressed the lack of uniformity and transparency in the way prescription drug information is presented online by health plans -- a great victory for the coalition of consumer and patient groups that worked diligently on this issue. Patients will now be able to shop for health plans more easily and have knowledge of which drugs are covered and at what cost. For more information about SB 1052, visit Senator Norma Torres' website.

The Governor vetoed AB 2418 by Assemblywoman Susan Bonilla aimed at improving medication adherence by synchronizing pharmacy refills as well as providing for early refill of eye drops to help patients better adhere to their medications. Many CPAT partners worked tirelessly on this measure, delivering hundreds of support letters to Governor Brown and have committed to working again next year on this important healthcare issue.

New Medicines in Development Report: HIV/AIDS
Advocate Advantage

How Innovation Holds Hope for Lupus Patients

By Hollaine Hopkins, Executive Director of the Lupus Foundation of Southern California

There's always a lot of confusion when someone is first diagnosed with any chronic disease. How did I get this? What can I do to treat this disease? What does this mean for my long-term health and my family? This is especially true for patients that are diagnosed with Lupus, as most people know little to nothing about this chronic disease that impacts approximately 1.5 million Americans. People of all races and ethnic groups can develop Lupus, and more than 16,000 new cases of Lupus are reported annually across the country.

READ MORE

Calendar

CPAT EVENTS

The California Partnership for Access to Treatment (CPAT) and the California Biotechnology Foundation partnered to host seminars to discuss the lack of transparency in drug formularies. Held in Pomona on Sept. 8 and in Sacramento on Sept. 17, 2014, each seminar brought together policymakers, providers, patient advocates and community leaders. The events highlighted resources available for consumers to help them determine the best health plans for their treatment needs and legislative efforts to improve transparency.

See the presentations here.








 

Join the Network



About the Leukemia & Lymphoma Society (LLS)
LLS is the world's largest voluntary health agency dedicated to blood cancer. The organization was founded in 1949 by Rudolph and Antoinette de Villiers after their son was diagnosed with the disease. Today, the organization aims to help blood cancer patients live better lives while working toward a cure, through research, patient services, public policy, public awareness, and fundraising.

LLS funds lifesaving blood cancer research around the world and provides free information and support services. It is led by a five-member Executive Leadership Team, where professionals devote their energies to LLS' mission on a full-time basis. In addition, a 30-member Board of Directors helps guide the Foundation part-time.

September is Leukemia and Lymphoma Awareness Month. Check out the LLS website to learn the facts about blood cancers.

Leukemia & Lymphoma Mission Statement:
The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Key priorities will ensure that the Leukemia & Lymphoma Society helps blood cancer patients live better, longer lives.

Website

/llsgreaterla/info

@LLSusa

 

CPAT PARTNER EVENTS

October 23-26
California State Conference National Association for the Advancement of Colored People
27th Annual CA HI NAACP State Conference
The Sofitel Luxury Hotel
223 Twin Dolphin Drive
Redwood City, CA 94065

To register, click here

March 6-7, 2015
Childhood Obesity Bay Area
Third Annual Childhood Obesity Bay Area Conference
9 a.m. - 5 p.m.
UCSF Medical Center
500 Parnassus Ave
San Francisco, CA

To register, click here
(Early bird discount ends December 1.)

The Childhood Obesity Bay Area Conference brings together remarkable speakers from diverse fields to discuss best practices in obesity prevention. This year's theme, Building Our Community, Empowering Our Children, highlights the power that strengthening our vibrant community of organizations, politicians, physicians and educators has for empowering our children and adolescents who have been affected by this epidemic. This two-day conference will allow people working in different fields of health, wellness and sustainable food to connect and collaborate. In addition to six keynote addresses, COBA 2015 will feature an array of panel discussions, break-out sessions, slam poetry performances, networking reception with tastings from sustainable wineries, optional garden tours, and small group dinners.

For more information, visit www.slowfoodsanfrancisco.com. Please contact Laura O'Donohue at laura@slowfoodsanfrancisco.com with any questions.



Would you like to see your organization's event listed? Contact Yadira Beas at yadira@perrycom.com to help promote your upcoming event.

Join the Network

Joining CPAT is free of charge. The benefits of becoming a CPAT partner include receiving a monthly e-newsletter, CA Access News, and you will be invited to participate in quarterly seminars and have the opportunity to promote health events on the CPAT website. For more information, please visit www.caaccess.org and to become a partner, simply complete the application online.

Join Now

Do you know a group who would be interested in joining CPAT?
Please send your referrals to:
Northern California - Yadira Beas
Southern California - Keeley Smith

Health Science News

PhRMA Innovation Hub

PhRMA recently launched a new Innovation Hub to showcase the latest data and research on innovation in the biopharmaceutical industry. The new Innovation Hub, accessible via www.Innovation.org, provides easy access to PhRMA resources related to the R&D process, the biopharmaceutical pipeline, and progress fighting diseases such as hepatitis C, Alzheimer's, leukemia, cancer, and HIV/AIDS. This website features a variety of infographics, videos, charts, timelines and more.

Innovation Hub



Medicare Part D Open Enrollment Toolkit

Medicare Part D open enrollment is approaching! This year, open enrollment starts on Wednesday, October 15 and closes on Sunday, December 7. With a wide variety of prescription drug plans to choose from, Medicare Part D has a plan that will fit any patients' needs. We encourage you to share this tool kit with your patients, constituents and stakeholders so they can be educated about the open enrollment period for this vital program. Download now.

Part D Open Enrollment Toolkit


The Impact of Growth in 340B Contract Pharmacy Arrangements

A new white paper from the Alliance for Integrity and Reform of 340B suggests that rapid contract pharmacy growth in the 340B program may not directly benefit the vulnerable patients for whom the program is intended. The 340B program was created to provide access to life-saving medicines for indignant patients, not create new business opportunities for retail pharmacies.


 

Want to receive late breaking CPAT and health care related news? Make sure to Like our Facebook Page and Follow us on Twitter.

980 9th Street, Suite 410
Sacramento, CA 95814
www.caaccess.org


Supported by America's Pharmaceutical Research Companies

If you do not wish to receive future issues of CA Access News, please send an e-mail to info@caaccess.org requesting to opt out from the mailing list. Please be sure to include the e-mail address where you are receiving newsletters.