June 14, 2022
The Observer
By CBM Newswire
(CBM) – On June 8, community leaders, public health advocates and racial justice groups convened for a virtual press event to urge Gov. Gavin Newsom to support the Health Equity and Racial Justice Fund (HERJ Fund).
The initiative supports community-based organizations addressing the underlying social, environmental and economic factors that limit people’s opportunities to be healthy — such as poverty, violence and trauma, environmental hazards, and access to affordable housing and healthy food. Health advocates would also address longstanding California problems related to health equity and racial justice problems.
“Our state boasts a staggering $97 billion budget surplus. If not now, when? Given the devastating impact of racism on the health and well-being of Californians of color it’s a travesty of the highest order that racial justice isn’t even mentioned in the Governor’s budget proposal,” said Ron Coleman, Managing Director of the California Pan-Ethnic Health Network.
Wednesday’s virtual community meeting and press event capped off a series of rallies held by supporters in cities across the state calling on Gov. Newsom to make room in his budget for the HERJ Fund.
Coleman facilitated the online event featuring representatives from service organizations speaking about their support for the fund and presenting plans for how the money would be used to support their shared mission of providing services to minority and underserved communities in California.
Jenedra Sykes, Partner at Arboreta Group, spoke about inequalities that exist in funding for smaller grassroots nonprofits and how traditionally larger, White-led nonprofits use state funds to subcontract with grassroots
nonprofits to provide services to communities of color at lower costs.
“The faith-based non-profits on the ground have the relationships, the access to those who are most vulnerable and marginalized among us who disproportionately have poorer health outcomes,” said Sykes. “This bill also evens the playing field a bit. Instead of going through the middleman of the established larger non-profits, funding will go directly to the people who are doing the work. The passion, the heart, the skills, the talents are there. It’s about the resources to fund these talents”
Coleman gave attendees an update on the status of the HERJ Fund’s path to inclusion in the state budget.
Now that the State Legislature has included the fund in their spending proposal for Fiscal Year ’22-23 (it was not included in Newsom’s “May Revise”), it must survive negotiations with the governor’s office before the June 15 deadline to finalize the budget.
A final budget needs to be in place by June 30, the last day for the governor to approve.
HERJ Fund supporters remain hopeful that funding for their program will be included in the final budget.
In the past, reservations have come from the Governor’s office supporting the fund came from questions around oversight, accountability and outcomes would look like. Updated mechanisms were added to the HERJ Fund’s proposal to alleviate those concerns and supporters of the fund believe that Governor Newsom is out of excuses.
“Our best shot at getting the HERJ Fund in the budget is now. We are hoping that all of you will keep the pressure on the Governor to ensure that this becomes a reality,” Coleman said. “If he does care about the intersections of health equity and racial justice then we will see funding.”
Attendees were encouraged to contact the Governor’s office and the Legislature to keep the pressure on them to include the fund. You can visit herjfund.org to learn more about the proposal and the effort to include it in the state budget.
Nadia Kean-Ayub, Executive Director of Rainbow Spaces, shared details about the valuable events and services community-based non-profits provide. She said there is no shortage of families in need who want to
participate in their organizations’ programs but, due to limited funding for transportation, many people never access services meant to help them.
“This tells me that when things are created in our communities, they are not making the impact we need in our Black, Brown and API communities,” Kean-Ayub said. I will continue to fight. To really make this grow, we need the state to understand that the true impact comes from the community and the people who are living these issues and who know how to help them.”
The rate of Americans diagnosed with diabetes isn’t slowing down, and the Covid-19 pandemic only exacerbated the risks and concerns for this debilitating chronic disease.
According to the American Diabetes Association, 1.5 million people will be diagnosed with diabetes this year. So why aren’t more people talking about it? The pandemic may have shifted the collective focus. After all, a nation in health crisis mode can only focus on so many problems at once. Yet hospitalizations and deaths due to diabetes or related complications were right behind the elderly and nursing home residents.
Aside from the pandemic pileup, the disease was not getting the attention it warranted, partly because of how the stigma attached to diabetes impacts our concern, even as it affects more people each year.
Between 1980 and 2014, the number of people with diabetes rose from 108 million to 422 million. “Prevalence has been rising more rapidly in low and middle income countries,” reports the World Health Organization. Diabetes can lead to blindness, kidney failure, heart attacks, stroke, and lower limb amputation.
Why Aren’t More People Talking About This?
“Diabetes is always swept under the rug because, in so many people’s minds, they just associate it with bad health habits and being overweight,” says Deena Fink of New York City. The Long Island native bartends in the West Village in addition to running a small online knitting business.
Most days, her Type 1 Diabetes doesn’t slow her down. It’s a disease she has been living with for sixteen years. “What really has to change is the stigma of diabetes,” Deena explains in an interview with Wealth of Geeks.
She is grateful for her health care plan, despite the roadblocks she often faces to receive her medication. “They have to start actually treating it as a chronic illness.”
Like many others during the first months of the pandemic, Deena was afraid to leave her house. “I didn’t even want to leave the house to go grocery shopping,” she says. The risks are different for someone with a chronic illness. “Just getting a cold, I am knocked out for several days.” She also could not get to a doctor’s office.
“You’re supposed to get your A1C done every quarter,” she explains, but she couldn’t see her doctor for a year and a half. So instead, Deena had to estimate what those numbers would be. The A1C test provides a three-month average of what blood sugar levels should be. It’s how a person with diabetes keeps themselves in range.
Deena faces a monthly battle with the insurance company just to receive her regular dosage of three insulin vials. Without insurance, she would have to pay $175 per vial.
The Global Factor
While lifestyle changes such as maintaining a healthy weight and diet, engaging in physical activity, and not smoking may decrease the health risks associated with diabetes, it does not guarantee that the disease won’t have harmful symptoms over time. Additionally, Covid-19 increases these risks across the globe.
Diabetes was responsible for 6.7 million deaths in 2021, according to the International Diabetes Federation. In addition to the 537 million adults living with diabetes today, an additional 541 million have Impaired Glucose Tolerance, a condition that places them at high risk of Type 2 Diabetes.
And what about the financial side? WHO reports that “diabetes caused at least 966 billion dollars in health expenditure – a 316% increase over the last fifteen years.”
As more people are diagnosed, the opportunity for visibility and change grows. Those with diabetes often become advocates for change.
“Stigma can result when you take an ‘invisible’ condition like diabetes out into the open,” says diabetes advocate Michael Donohoe of Ohio. When he was diagnosed with Type 2 Diabetes, he was also diagnosed with a heart condition. “I try to improve awareness and understanding by being as open about my diabetes as possible. I also advocate loudly for people who are newly diagnosed or severely impacted,” he says.
Covid Collision
Although the elderly and nursing home residents were hit hardest by the virus, people with diabetes were right behind them. This news comes to light as the total number of deaths in the United States nears one million.
“People with poorly controlled diabetes are especially vulnerable to severe illness from Covid, partly because diabetes impairs the immune system but also because those with the disease often struggle with high blood pressure, obesity, and other underlying medical conditions,” reports the New York Times.
Those with diabetes have to keep up with their disease constantly. “It’s a disease that’s a pain,” says Deena, “because you never stop taking care of yourself. Every decision you make for every day of your life will affect your diabetes.”
“It’s so much work,” she says, “but it keeps you alive.”
With diabetes diagnoses soaring across the globe, it is only a matter of time before the world stops hiding from this health crisis and confronts it head-on.
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