June 1, 2022
Politico
By Matthew Halse
Discrimination and stigma continue to fuel inequalities in health care among sexual and gender minority groups. Shockingly, transgender people are over 13 times more likely to develop HIV than any other populations. Policy barriers and inadequate health care services continue to place these groups at high risk of acquiring HIV, despite over 40 years of progress, an issue reinforced by a landmark study on health equity.
The LGBTI+ Health Equity Report launched in August 2021 during Copenhagen WorldPride, highlighted the issues faced by LGBTI+ communities living in cities, including inadequate housing and gender-based discrimination. In the 21st century where access to good-quality health care should be a basic human right, many people within the LGBTI+ community remain underserved and discriminated against.
The study, led by The International Association of Providers of AIDS Care (IAPAC) and funded by ViiV Healthcare, examined responses from 50 Fast-Track cities from around the world1. The research found a clear link between attitudes to HIV in a city and access to HIV care. Transgender and queer people were particularly disadvantaged, due to their more specific treatment needs. For transgender and nonbinary youth, the situation is even worse because access to the treatments they need is often denied altogether. Coupled with recent anti-transgender legislation in countries across East Africa and states in North America2,3 to note but a few — barriers to care are compounded further by social isolation.
Stigma is a major contributor to emotional distress, and fear of victimization can prevent people from accessing care
Over the past few years, emotional wellbeing has been prioritized on health agendas around the world but mental health among LGBTI+ communities is still a major concern, with high rates of anxiety and depression as a result of the social and cultural challenges they face. There continues to be disenfranchised groups impacted by the lack of access to services including mental health care. In Dublin for example, 41.7 percent of sexual minority men reported to have anxiety whilst depression was evident in 58.2 percent of transgender women in Bangkok.1 Stigma is a major contributor to emotional distress, and fear of victimization can prevent people from accessing care. One respondent in Bangkok described a lack of appropriate services in Thailand for LGBTI+ communities. In addition, discrimination means people don’t disclose their sexual orientation, which can result in inappropriate care or inadequate counseling.
Governments must do more to recognize minorities and their health needs if health inequities are to be eliminated. First, change is essential in the way people living with HIV and LGBTI+ groups are viewed within society to reduce discrimination and stigma. Secondly, greater consideration of the factors that contribute to health inequities such as access to housing, food and employment, should be made a global priority. For some countries, the inequalities are far greater as seen in Africa where 69 percent describe access to employment a ‘serious problem’ compared to 27 percent globally.1
Developing a deeper understanding of sexual minorities could help us address some of the broader social issues that drive health inequity
Developing a deeper understanding of sexual minorities could help us address some of the broader social issues that drive health inequity. The lack of non-HIV health data amongst gay, bisexual and other men who have sex with men and transgender women was particularly notable in the research. Without aggregated data to understand how and why people are accessing health services, particularly at a local level, it becomes much harder to put in place appropriate interventions, a key consideration in order to inspire positive change.
In the face of remarkable inequity, the resilience of the LGBTI+ communities who have found ways to support each other despite discrimination and hostility, is commendable. While HIV services are far from perfect, they are clear leaders compared to other services for the LGBTI+ population and should serve as a blueprint for how other services should be developed. The impact of nonprofit organizations has also shown how collaboration and respectful dialogue can make positive changes for these disadvantaged groups.
More must be done to improve the inclusivity of data collection, particularly with LGBTI+ people
What needs to happen to see real improvement? “More must be done to improve the inclusivity of data collection, particularly with LGBTI+ people to further understand the diversity and complexity of their needs. Collaboration between governments, nonprofits, health care services and local communities is an important first step in seeding real change across the LGBTI+ ecosystem in bringing an end to discrimination and stigma. This will involve investment in community-based organizations, alongside improving awareness of the issues amongst political, community and religious leaders to garner wider support. Policymakers and governments must shape legislation to address discrimination and criminal justice disparities in the LGBTI+ community, and together with a focus on educating the public and health community on the effect of stigma on health outcomes, this could be a roadmap toward lasting progress.
Only together can we hope to tackle the complex web of discrimination, sex work laws, police mistreatment, and criminalization of HIV exposure that continue to diminish the health equity of LGBTI+ people in cities all over the word. Access to adequate health care is a human right and one that should be afforded to all communities including LGBTI+ communities.
The rate of Americans diagnosed with diabetes isn’t slowing down, and the Covid-19 pandemic only exacerbated the risks and concerns for this debilitating chronic disease.
According to the American Diabetes Association, 1.5 million people will be diagnosed with diabetes this year. So why aren’t more people talking about it? The pandemic may have shifted the collective focus. After all, a nation in health crisis mode can only focus on so many problems at once. Yet hospitalizations and deaths due to diabetes or related complications were right behind the elderly and nursing home residents.
Aside from the pandemic pileup, the disease was not getting the attention it warranted, partly because of how the stigma attached to diabetes impacts our concern, even as it affects more people each year.
Between 1980 and 2014, the number of people with diabetes rose from 108 million to 422 million. “Prevalence has been rising more rapidly in low and middle income countries,” reports the World Health Organization. Diabetes can lead to blindness, kidney failure, heart attacks, stroke, and lower limb amputation.
Why Aren’t More People Talking About This?
“Diabetes is always swept under the rug because, in so many people’s minds, they just associate it with bad health habits and being overweight,” says Deena Fink of New York City. The Long Island native bartends in the West Village in addition to running a small online knitting business.
Most days, her Type 1 Diabetes doesn’t slow her down. It’s a disease she has been living with for sixteen years. “What really has to change is the stigma of diabetes,” Deena explains in an interview with Wealth of Geeks.
She is grateful for her health care plan, despite the roadblocks she often faces to receive her medication. “They have to start actually treating it as a chronic illness.”
Like many others during the first months of the pandemic, Deena was afraid to leave her house. “I didn’t even want to leave the house to go grocery shopping,” she says. The risks are different for someone with a chronic illness. “Just getting a cold, I am knocked out for several days.” She also could not get to a doctor’s office.
“You’re supposed to get your A1C done every quarter,” she explains, but she couldn’t see her doctor for a year and a half. So instead, Deena had to estimate what those numbers would be. The A1C test provides a three-month average of what blood sugar levels should be. It’s how a person with diabetes keeps themselves in range.
Deena faces a monthly battle with the insurance company just to receive her regular dosage of three insulin vials. Without insurance, she would have to pay $175 per vial.
The Global Factor
While lifestyle changes such as maintaining a healthy weight and diet, engaging in physical activity, and not smoking may decrease the health risks associated with diabetes, it does not guarantee that the disease won’t have harmful symptoms over time. Additionally, Covid-19 increases these risks across the globe.
Diabetes was responsible for 6.7 million deaths in 2021, according to the International Diabetes Federation. In addition to the 537 million adults living with diabetes today, an additional 541 million have Impaired Glucose Tolerance, a condition that places them at high risk of Type 2 Diabetes.
And what about the financial side? WHO reports that “diabetes caused at least 966 billion dollars in health expenditure – a 316% increase over the last fifteen years.”
As more people are diagnosed, the opportunity for visibility and change grows. Those with diabetes often become advocates for change.
“Stigma can result when you take an ‘invisible’ condition like diabetes out into the open,” says diabetes advocate Michael Donohoe of Ohio. When he was diagnosed with Type 2 Diabetes, he was also diagnosed with a heart condition. “I try to improve awareness and understanding by being as open about my diabetes as possible. I also advocate loudly for people who are newly diagnosed or severely impacted,” he says.
Covid Collision
Although the elderly and nursing home residents were hit hardest by the virus, people with diabetes were right behind them. This news comes to light as the total number of deaths in the United States nears one million.
“People with poorly controlled diabetes are especially vulnerable to severe illness from Covid, partly because diabetes impairs the immune system but also because those with the disease often struggle with high blood pressure, obesity, and other underlying medical conditions,” reports the New York Times.
Those with diabetes have to keep up with their disease constantly. “It’s a disease that’s a pain,” says Deena, “because you never stop taking care of yourself. Every decision you make for every day of your life will affect your diabetes.”
“It’s so much work,” she says, “but it keeps you alive.”
With diabetes diagnoses soaring across the globe, it is only a matter of time before the world stops hiding from this health crisis and confronts it head-on.
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