August 5, 2022
Bloomberg Law
By Janelle Alleyne and Stefanie Jones Doyle
The Centers for Medicare and Medicaid Services in April released its framework for health equity, seeking to revamp its approach to addressing the needs of underserved communities.
The framework is the agency’s plan to address the imbalance in benefits and opportunities underserved communities experience. The framework is CMS’s update to its previous plan, and the framework is a more comprehensive, 10-year approach to imbue equity considerations into all of the agency’s programs, including not only Medicare, but Medicaid, CHIP, and the Health Insurance Marketplaces.
As the largest provider of health insurance in the nation, facilitating the health care and coverage of over 170 million people, CMS’s efforts will most certainly impact the entire landscape of the country’s health-care delivery system. In its efforts to target “underserved communities,” CMS paints with a broad brush to address the concerns of not only members of racial and ethnic communities, but also people with disabilities; members of the LGBTQ+ community; individuals with limited English proficiency; members of rural communities; and those who otherwise experience the adverse effects of persistent poverty and inequality.
The framework is designed to enhance CMS’ ability to ascertain if—and to what extent—its programs and policies “perpetuate or exacerbate systemic barriers to opportunities and benefits” among underserved communities.
Implementing the Framework
CMS intends to implement its framework by addressing five stated priorities.
First is expanding the collection and use of data collection from historically underserved communities. Second is assessing CMS’ programs for causes of disparities and addressing policies and operations that may contribute to inequities. Third is building the “collective capacity” of health-care organizations and the workforce to reduce disparities. Next is advancing language access, health literacy, and culturally tailored services to alleviate the burden that disparities in these areas play in health outcomes. And finally, facilitating health-care organizations and providers to increase accessibility to services and coverage for the one in four American adults having some form of disability.
CMS has outlined its planned implementation by emphasizing the reach and accomplishments of current programs and the agency’s intention to expand some aspects of these programs in support of its decade-long plan to “achieve health equity and eliminate disparities.” The agency has already begun to put its plan to achieve its priorities into action.
CMS recently announced the availability of grant funds to support the design and testing of interventions that may reduce disparities in underserved communities. It also has released a fact sheet listing some of the most pressing barriers to health equity and identifying CMS resources to assist in addressing those barriers.
The framework is a positive first step to addressing a significant need. However, the devil is in the details.
The framework describes how some of its current programs factor into the program’s implementation but does not provide information sufficient to fully analyze how CMS will address some of the critical barriers that its plan may face in implementation.
Data Privacy
For example, the framework depends on collecting new and more types of data to bolster many of CMS’ current programs. Adding new data elements, however, poses additional privacy concerns.that CMS must proactively address.
External stakeholders tasked with collection of this additional data must confirm that they follow patient privacy laws and that all collected data is secure from breach. Providers must also ensure adherence to all federal and state privacy laws that require written consent from patients before their health information is released to other people and organizations.
Failure to obtain the proper consents or properly guard information from potential breach may inadvertently subject providers and external stakeholders to liability.
Reviewing the Conditions of Participation and/or Coverage
Another option to address issues of health equity and disparities discussed in the framework is to review the conditions that that the CMS says “organizations must meet in order to begin and continue participating in the Medicare and Medicaid programs.”
CMS projects that these efforts will help the agency to identify and eliminate potential barriers to enrollment in and access to CMS benefits and services by underserved communities. There is no additional discussion, however, or example of the type of changes that may be proposed.
Health-care organizations must meet the conditions in order to participate in the Medicare and Medicaid programs, and the conditions direct standards regarding quality concerns and the protection of beneficiaries.
It is essential that any proposed changes consider not only the possible impacts to improving health equity, but also the impacts to organizations. Health-care organizations are given little information in the framework regarding what may come, which may leave organizations ill-prepared to respond.
CMS Gives Insufficient Guidance
CMS has provided a detailed framework that previews many of the programs it intends to augment or redirect to accomplish its goal of achieving health equity and eliminating disparities, but does not provide sufficient guidance to determine how some of the solutions it might consider would impact providers. The agency provides in the framework the “how,” but not the “what.”
Health-care organizations can begin to prepare for the “what” by using their own internal programs to address health equity issues and sharing their experiences to help guide CMS in fleshing out the framework’s details.
CMS’s next iteration of guidance regarding its framework should provide more detailed information regarding the initiative’s legal and administrative impacts so that providers can assess the potential effects of the proposed solutions and better assist CMS in achieving its crucial goals.
Until then, health-care organizations and providers seeking to partner with CMS in its efforts to improve health equity and reduce health disparities will be left in search of a destination without a map.
The rate of Americans diagnosed with diabetes isn’t slowing down, and the Covid-19 pandemic only exacerbated the risks and concerns for this debilitating chronic disease.
According to the American Diabetes Association, 1.5 million people will be diagnosed with diabetes this year. So why aren’t more people talking about it? The pandemic may have shifted the collective focus. After all, a nation in health crisis mode can only focus on so many problems at once. Yet hospitalizations and deaths due to diabetes or related complications were right behind the elderly and nursing home residents.
Aside from the pandemic pileup, the disease was not getting the attention it warranted, partly because of how the stigma attached to diabetes impacts our concern, even as it affects more people each year.
Between 1980 and 2014, the number of people with diabetes rose from 108 million to 422 million. “Prevalence has been rising more rapidly in low and middle income countries,” reports the World Health Organization. Diabetes can lead to blindness, kidney failure, heart attacks, stroke, and lower limb amputation.
Why Aren’t More People Talking About This?
“Diabetes is always swept under the rug because, in so many people’s minds, they just associate it with bad health habits and being overweight,” says Deena Fink of New York City. The Long Island native bartends in the West Village in addition to running a small online knitting business.
Most days, her Type 1 Diabetes doesn’t slow her down. It’s a disease she has been living with for sixteen years. “What really has to change is the stigma of diabetes,” Deena explains in an interview with Wealth of Geeks.
She is grateful for her health care plan, despite the roadblocks she often faces to receive her medication. “They have to start actually treating it as a chronic illness.”
Like many others during the first months of the pandemic, Deena was afraid to leave her house. “I didn’t even want to leave the house to go grocery shopping,” she says. The risks are different for someone with a chronic illness. “Just getting a cold, I am knocked out for several days.” She also could not get to a doctor’s office.
“You’re supposed to get your A1C done every quarter,” she explains, but she couldn’t see her doctor for a year and a half. So instead, Deena had to estimate what those numbers would be. The A1C test provides a three-month average of what blood sugar levels should be. It’s how a person with diabetes keeps themselves in range.
Deena faces a monthly battle with the insurance company just to receive her regular dosage of three insulin vials. Without insurance, she would have to pay $175 per vial.
The Global Factor
While lifestyle changes such as maintaining a healthy weight and diet, engaging in physical activity, and not smoking may decrease the health risks associated with diabetes, it does not guarantee that the disease won’t have harmful symptoms over time. Additionally, Covid-19 increases these risks across the globe.
Diabetes was responsible for 6.7 million deaths in 2021, according to the International Diabetes Federation. In addition to the 537 million adults living with diabetes today, an additional 541 million have Impaired Glucose Tolerance, a condition that places them at high risk of Type 2 Diabetes.
And what about the financial side? WHO reports that “diabetes caused at least 966 billion dollars in health expenditure – a 316% increase over the last fifteen years.”
As more people are diagnosed, the opportunity for visibility and change grows. Those with diabetes often become advocates for change.
“Stigma can result when you take an ‘invisible’ condition like diabetes out into the open,” says diabetes advocate Michael Donohoe of Ohio. When he was diagnosed with Type 2 Diabetes, he was also diagnosed with a heart condition. “I try to improve awareness and understanding by being as open about my diabetes as possible. I also advocate loudly for people who are newly diagnosed or severely impacted,” he says.
Covid Collision
Although the elderly and nursing home residents were hit hardest by the virus, people with diabetes were right behind them. This news comes to light as the total number of deaths in the United States nears one million.
“People with poorly controlled diabetes are especially vulnerable to severe illness from Covid, partly because diabetes impairs the immune system but also because those with the disease often struggle with high blood pressure, obesity, and other underlying medical conditions,” reports the New York Times.
Those with diabetes have to keep up with their disease constantly. “It’s a disease that’s a pain,” says Deena, “because you never stop taking care of yourself. Every decision you make for every day of your life will affect your diabetes.”
“It’s so much work,” she says, “but it keeps you alive.”
With diabetes diagnoses soaring across the globe, it is only a matter of time before the world stops hiding from this health crisis and confronts it head-on.
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